Yesterday morn we woke at about 4:30 am....flew out of Idaho Falls at 6:00am...were at the doctors from 11am-2:30pm...flew out of Seattle at 6:00pm...got home about 11:00pm. I think my favorite part of the whole flying experience was when I opened that little air blower above my head on the plane...and Clay turned to me and said, "You realize you're just breathing in fresh farts right?" My husband is such a charmer :)
My ankles hurt. I'm serious. I have been hobbling around all morning! I think it's from the hustle and bustle to each terminal. We flew 4 airplanes yesterday...
So here's the scoop-
Clay appears to be on the right track! His bloodwork keeps coming back good- meaning his liver/kidneys are in great shape...which is great news considering how many antibiotics are going into his body at once. The doc said, "I wish all my pateints had your liver levels" or something like that.
The doc thinks she has finally grasped what works for Clay's body since he had such a ginormous herx a few weeks ago. She put it like this "First we start with sticks and stones, then we move to guns, then we nuke em"...she emphasized this was an ANALOGY. teeheh. But basically she is like...alrghty, time to turn it up a notch! She explained that when he has bad herx's like that, his body is emptying a TON OF CRAPOLA. So that's good! And sucky.
I got a few answers to things that have been bothering me lately. For instance- the past year or so I have been grinding my teeth like MAD. The doc explained to me that this is classic bartonella (which is a co-infection that runs with Lyme disease- thats what causes the joints to hurt)...who knew?!
Another funny thing- Bad circulation can occur with lyme/bartonella (i kinda confuse which causes which sometimes) Clay always says his hands are SO COLD. I believed him, but was always confused. His hands NEVER felt cold to me. Well, when she was doing physical exams on me....she felt my hands and was like- woah! Cold hands! Are they always this cold? And I'm like...uhh I never noticed! They don't feel cold! And she said- well do my hands feel warm? And I said- yeah actually they do! And then it clicked. No wonder Clay's hands never feel cold! Mine are just like them! Does anyone else think of Edward and Bella when I talk about this? I did too.
I am going to go fill my prescriptions and start getting treated TODAY. Here are some general estimated answers she had for us regarding some things:
She thinks I will be cured within a year. YES! My new years goal will hopefully come true!
She thinks that we shouldn't consider having a baby for at least 2 years...because she thinks that's when she'll have Clay UNDER CONTROL. Not cured, but under control. The thing is, I was just telling Clay the other day that 2 years sounded about right to wait. Pretty sucky, but that's okay. I'm glad to have a general plan. She says that as long as I'm on baby-safe antibiotics throughout my pregnancy, the baby shouldn't get lyme disease. She says she deals with this in her office ALL the time. I'm so grateful we found who we did when we did.
There were a lot of other random things too, but all probably too jargony and lyme detailed for the general public :) haha. Those are the highlights.
OH YEAH- one more thing. This was great news! She wants to see us in one month, for one last time...then we can start going every other month! We will still have phone consults in the off months, but this will make it SO much less stressful, and wallet-friendly to only travel every other month. Yay for us!
Well...I had a list of things I wanted to get done today, but I just don't know that they'll get done. It might just have to be a rest day! I'm so grateful for Walgreen's drive-through pharmacy. I don't even have to get out of my pj's and no one will ever know! ('cept you guys)
Here's to the new year. It really is gonna be a good one. I can feel it. Great things are in store! You just wait!