Well, we had a blast. We were on the Oregon Coast (my home) for a week, then headed to Seattle for an appointment. Both went great!
So I'll upload some pictures later and talk about Oregon then...but for now I'll update you on my Seattle trip.
Just a pre-update update....the past two months I've been on herbs only, no antibiotics. I've still felt really good, but my joints have been consistently stiff...every day. Also, there was the fact that it took me at least a week to recover from walking in DC, and my running thing...and my hair has been falling out a bit more and I've had a rash on my chest/shoulders/upper back. So all of these things I thought maybe I could explain away...but I still talked to our doctor about it.
She looked at the rash and said, "That's a bartonella rash". Bartonella is a co-infection of Lyme. We knew Clay definitely had it, but didn't really think I had it. Lyme has the same symptoms as Bartonella...so you could miss it. She looked at my past few treatment plans and realized that my LAST treatment plan (two appts ago) was treating only Lyme, and I was feeling pretty good. But this last treatment plan I was taking herbs that treat Lyme AND Bartonella, and I was having these issues. So basically it means that the herbs were working- and fighting the bartonella. BUT- now realizing that I have bartonella in me (and she says that she can see it is very little...based on my symptoms), I am back on antibiotics specifically trying to fight off that bartonella. She doesn't think it will take too long, so that is good. And we still feel like I'm pretty much rid of Lyme. So that's great! I know I don't explain all this very well...so sorry if it's confusing. It all makes sense in my head.
Clay is KINDA the same situation. She thinks he has about a year left....which would make his treatment about 3 years...and in the beginning she said 3-5 years, so I suppose that's great. We pretty much also feel like his Lyme is almost gone and that bartonella is really the one sticking around that we need to focus more on.
Overall, we are feeling really great about the appointment and feel like we are really narrowing down on this thing. Yeah, it's disappointing I'm back on antibiotics again...but I had a feeling something wasn't quite right with me still...and it all makes a lot of sense now and I'm glad I am going to be able to get rid of this last dealio! Oh- and the other great news is, our antibiotics we are on this time aren't very expensive!!! YAY! One of them was only like $10.
And...we are definitely waiting to have babies until Clay is done with treatment as well. So, not for a year or so. Just thought I'd put that information out there.
OH- and one more thing. I made a pact with a couple of my sisters to not have any sugar until Thanksgiving. I am also adding gluten to that. And no treats. So basically my goal is to not have any treats (with either sugar or natural sugar), or gluten, at ALL. Until Thanksgiving. No cheats. Why you ask? Well...basically here it is. Like I just pointed out, we can't have babies until Clay and I are better. EVERY form of sugar (even fruit), feeds this danged Lyme Disease. So...I've kinda decided that these natural treats I do...they are still feeding it. Even if it's a little bit. Or way less, it's still happening. I don't want to be fighting this thing my whole life. I want to have healthy babies. I want to have enough control over my bodily desires and taste buds, to forego a temporary pleasure in order to get what is really the most important piece of my life. I'm not here to have treats. I'm here to have a family. So...yeah. I will have a piece of Clay's birthday cake on August 15th, and I will have something on Thanksgiving. Then I'll not have anything until Christmas. Then probably nothing until my birthday. You get the picture. And you may think, why not once a week? Can't you just have one every once in a while? Well, quite frankly- NO. First off, I am not a person that can moderate my sweets. I basically can eat an entire tray of cookies in one sitting, no sweat. So...that doesn't really work. Second, it just makes it harder. If it's in my body, I want it more. Then of course the most important reason is...I don't need it...and Lyme does in order to survive. So I'd rather just starve it completely instead of giving it a weekly meal. You know? I'm pretty confident this will stick. I will still eat fruit (it has more good than bad) and my homemade larabars (walnuts, dates, cocoa). But that's the extent of my sweets. Feel bad for me all you want but honestly I just feel more powerful. I have control over my body. I love my babies. And I want to get them here soon, with strong healthy bodies.
Alright- till next time.